12:35 Last update for today. Finally fell asleep at 8:00. The 5-8 stretch wasn’t too bad but he sure wasn’t happy even with the morphine. I made Mom go home at about 9:00 and went to sleep on the couch in his room. I just woke up (had a bad dream that I was in the hospital because my kid just had brain surgery) he is still in a very deep sleep and looks quite comfortable. I am going back to sleep and feeling hopeful for the first time in quite a while. 🙂
5:20 We have been back in the room for an hour and a half. Evan just woke up. He’s not happy so the nurse gave some morphine to keep him comfortable. The new tube just got hooked up and the baclofen is flowing to his brain. The starting dose is incredibly small at less than 100 micrograms per day vs current 60 milligrams orally. They really shaved quite a bit of his hair, the OR nurse was kind enough to save some locks for us.
3:45 Done Dr. just came out and gave us the all clear.
3:15 Anesthesiologist just called us in the waiting room. All went well. Doing final stitches and cleanup. Will be doing a post-op CAT Scan and then straight up to Pediatric Intensive Care unit where he will stay for the next few days.
2:55 Brief chat with an OR Tech who went into the room to get a status update. Everything appears to be going well. Expected to be another 45 minutes.
2:38 Still waiting…..
1:23 Surgeon just came to see us. Let us know the GI Dr. Already replaced his G-Tube with the Mic-Key button. Now the brain work will begin.
12:55 Mom and I went with Evan to CAT Scan room. Still sleeping. Dr. Started anesthesia. Lots of kisses goodbye. Now in the waiting room.
12:20 Rolled down to pre-op. Evan was sound asleep. Final meetup with the surgeon. Hooked him up to IV and monitors. Still sleeping on his own.
Surgery Day Updates
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I’m so glad the surgery went well. Thinking good thoughts for Evan and his recovery.
We have been following your reports all day. We are glad that Evan got through the surgery well. May Evan’s recovery be smooth and may he just keep on improving. We have been praying for dear little Evan and shall continue to do so. Our hearts and very best wishes are with him and the entire family. We hope you know how much we care. Stay strong. With all that you are going through you still take the time to keep us posted. Thank you. It is greatly appreciated.
Love from our family to all of you.
Fred and Irene and the whole family
Keep the good news coming.
Very very happy that the surgery went so well. You guys are constantly in my thoughts and prayers. I agree with Heidi… keep the good news coming!!!
Thank you for the update today. We’ve been thinking about Evan all day. Will continue to send all our good wishes and prayers and hope that every day going forward will bring good news.
our prayers for a good surgery were answered, now prayers for improvement and strength for all …
So glad to hear some positive news! You and your family are in my daily thoughts.