12:35 Last update for today. Finally fell asleep at 8:00. The 5-8 stretch wasn’t too bad but he sure wasn’t happy even with the morphine. I made Mom go home at about 9:00 and went to sleep on the couch in his room. I just woke up (had a bad dream that I was in the hospital because my kid just had brain surgery) he is still in a very deep sleep and looks quite comfortable. I am going back to sleep and feeling hopeful for the first time in quite a while. 🙂
5:20 We have been back in the room for an hour and a half. Evan just woke up. He’s not happy so the nurse gave some morphine to keep him comfortable. The new tube just got hooked up and the baclofen is flowing to his brain. The starting dose is incredibly small at less than 100 micrograms per day vs current 60 milligrams orally. They really shaved quite a bit of his hair, the OR nurse was kind enough to save some locks for us.
3:45 Done Dr. just came out and gave us the all clear.
3:15 Anesthesiologist just called us in the waiting room. All went well. Doing final stitches and cleanup. Will be doing a post-op CAT Scan and then straight up to Pediatric Intensive Care unit where he will stay for the next few days.
2:55 Brief chat with an OR Tech who went into the room to get a status update. Everything appears to be going well. Expected to be another 45 minutes.
2:38 Still waiting…..
1:23 Surgeon just came to see us. Let us know the GI Dr. Already replaced his G-Tube with the Mic-Key button. Now the brain work will begin.
12:55 Mom and I went with Evan to CAT Scan room. Still sleeping. Dr. Started anesthesia. Lots of kisses goodbye. Now in the waiting room.
12:20 Rolled down to pre-op. Evan was sound asleep. Final meetup with the surgeon. Hooked him up to IV and monitors. Still sleeping on his own.